Moy Davitts and Kilmeena played out a thriller in the Mayo GAA Intermediate Club Football Championship final in MacHale Park, Castlebar. Pic: Conor McKeown
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22 Oct 2025
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22 Oct 2025
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Shahabuddin Ghias has launched a GoFundMe fundraiser for his son, Salahuddin, who has been diagnosed with Hunter Syndrome (MPS II).
A Mayo man is looking to raise vital funds for his son's medical treatment as he battles a life-limiting genetic disorder.
Shahabuddin Ghias has launched a fundraiser for his three-year-old son, Salahuddin, who has been diagnosed with Hunter Syndrome (MPS II) — a rare, life-limiting genetic disorder affecting both the body and brain.
The condition causes a gradual loss of physical and cognitive abilities, making once-simple tasks like walking, playing, and communicating increasingly difficult.
“Watching him struggle is heartbreaking,” Shahabuddin said.
The family is seeking support to access therapies, medical treatments, and potentially life-saving international clinical trials such as RGX-121 gene therapy, which could help slow or reverse the disease’s effects.
Funds raised will cover therapies, medical tests, enzyme replacement therapy, medicines, mobility aids, and travel for treatment abroad. “Every day without proper care could make a lasting difference,” Shahabuddin said.
At the time of writing, over €1,000 has been raised toward the €2,400 goal to help give Salahuddin the care he requires.
You can donate to the 'Hope for Salahuddin' fundraiser on GoFundMe by clicking here.
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