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Lighting up for Lewis

News

LET THERE BE LIGHTSLisa and Eoin Malone are pictured at their family home in Kilmaine with their children Corey and Chloe.  Pic: Paul Mealey

Cory Kilbane


A Christmas lighting display in aid of Lewis Harte Walsh (pictured below) was held by Lisa and Eoin Malone at their home in Creevarroddaun, Kilmaine on Friday evening.
In their second year of hosting the event, the couple decided this year to raise funds for the six-year-old boy from Castlebar who suffers from Duchenne muscular dystrophy (DMD), a severe muscular dystrophy characterised by progressive muscle degeneration and weakness.
“I have a friend that works with Lewis’s dad, Pádraig, and she knew that we did this last year and that we were doing it for charity again this year. She messaged me and asked me would I meet Anne Marie [Lewis’s mother] and Pádraig for a coffee and a chat about Lewis,” Lisa Malone told The Mayo News yesterday (Monday).
“I met them on the Monday for coffee, and I already had my mind made up by the time I was leaving them. I messaged them on the Wednesday to ask would it be okay, and they were delighted … We invited them to the house then for Lewis to turn on the lights for us,” she added.
“We had a good few people locally around that came, 40 or 50 people. There was around 20 or 22 kids. Lewis had his own little remote, and he turned on the lights with it. It was a really lovely moment.”
Dream
Prior to Lisa’s decision to raise funds for Lewis, she had already heard about his incredible story. “I had already read up on him, so it was great to meet his family, and I was honoured going to meet them. We clicked straight away … they’re such lovely people.
“I had other [worthy-cause] options to choose from, but whatever it was about Lewis and his family, I felt I wanted to help them so much,” she explained.
The couple have raised €280 so far for Lewis, and their aim is to help his dream come true of visiting Lego Land whilst he still has the ability to walk.
The Mayo News previously reported on little Lewis’s battle with DMD – most recently on October 10 during his family’s ongoing battle for Government funding for a potentially life-changing drug after the HSE refused to pay for the new medicine.
The average life expectancy for people who suffer with DMD is mid to late 20s; however, it is thought that with excellent care, some sufferers may live to their 30s or 40s.
Lewis is one of just five boys in the country who suffer from the illness.

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VISITING Lewis Harte-Walsh (6) at Lisa and Eoin Malone’s home in Creevarroddaun, Kilmaine with his mum Anne Marie (left), dad Padraig and sister Danielle. (Picture courtesy of Lisa Malone.)

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